About Us

Founder’s Message – A Word From Amy Rivera

Living with lymphedema hasn’t been easy, but I have learned to accept this “rare”
disease. I was born with primary lymphedema, however; I was misdiagnosed for
many years. This led to lack of proper treatment, education and most of all lack of
quality of life. At the age of 21 I was diagnosed with secondary lymphedema due to
a lymphadenectomy in order to remove a melanoma tumor in my right leg. My
entire life has been a fight since birth and will continue to fight. I often asked why
me? Soon after, the answer was clear. I had to help others win their battle against
lymphedema. My passion and dedication sparks through my advocacy. I’m very
thankful for my disease. Everyone has a story. Take time to listen and spread

Our Vision

Our vision is a world that recognizes and understands lymphatic disease.


Our Mission

Our mission is to assist in providing financial assistance to Lymphedema patients in need, raise awareness, build a strong sense of community and improving quality of life.

Our Goals

Connecting patients with other patients, physicians, therapist and other medical professionals. NFLF is committed to improving the quality of life for patients by assisting with out of pocket expenses

A Special Thanks

One person can’t change the world, but a community who bring unique contributions to our cause can. Thank you who have given your time, resources and energy so NFLF could expand our vision, reach our goals and fulfill our mission.

❝Ninjas Fighting Lymphedema share knowledge, compassion, and truth about Lymphedema and Lymphatic Diseases. There are healthy ways to live with LE and Lipedema and Amy is a living example of that!❞



❝Ninjas Fighting Lymphedema shows great support for the LE community. This foundation is absolutely amazing..❞



❝NFLF is more than just a foundation, they are the future of Lymphedema❞

LE mother

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